Saturday, August 6, 2016

Summer and storms...

Wow! It's been a long time since I posted anything. I had kind of a rough Spring and Summer. Have you ever heard of a Dystonic Storm? That's what I have been dealing with for the past few months. It's also called Status Dystonicus. It's sort of a rare complication of Cerebral Palsy. I have dystonia, which just means that I have abnormal muscle tone because of my CP. So, the Dystonic Storm is my muscle tone being way too high and I was moving my arms constantly. It's really annoying and difficult to sleep. It also makes me sweat a lot and my heart rate gets really high. I was also having some pain in my wrists and arms. I even had some really bad muscle spasms. The storm went away, but then kept coming back. I'm really lucky to have awesome doctors, especially Dr. Pavone! She's a physiatrist, which is like a physical rehab specialist. I'm feeling so much better now! The medicine I have to take for the storms makes me really tired, so a lot of the summer I've been either storming or really tired. I'm looking forward to finishing up my summer feeling all better!

I can't believe I am going to be a SENIOR in high school this year! High school has been the best years of my life so far. I will be sad when I leave because I have made so many friends and gotten to know the teachers and staff really well. My dream job is to come back to my high school and work there as a teacher or maybe a counselor. I think college will be awesome, too. I'm not sure where I'm going yet, but I have some ideas. I think I want to either be a teacher or maybe a psychologist. I also really love animals, especially dogs, so I might do something that works with animals. Maybe I could be a dog psychologist that teaches a class! My life has been running by too fast. My mom wants me to go back to Kindergarten!

In between storms, I have had a great summer. I went to visit my cousins in Kansas, I went to Iowa for a weekend to visit friends and family. I have hung out with my friends a few times, but not as much as I want to! Enjoy the rest of summer, I know I plan to!


Wednesday, March 30, 2016

You never know unless you try!

First and foremost, PROJECT DANCE was a HUGE success this year! We had so many people at it and a ton of kids signed up to be buddies to guests with special needs. We had a ton of volunteers, too. Everybody had a great time AND we raised a bunch of money.

I believe that part of the reason why disabled people are in the world today is to inspire others. Someone that works with me at school sent me a video of a friend of hers that now has ALS and uses a wheelchair and a communication device. He said that God has touched his life by helping him inspire others because of his ALS. A lot of people tell me that I inspire them and that makes me feel awesome because I feel that it is my calling. I am so lucky and blessed that I am able to inspire people. My friend's with disabilities inspire me and they always make my day. When I see some of my friends at school, they make me so happy. My mom tells me that I do that for other people.

I am helping out with the volleyball team this spring. What a great group of guys! They are a silly bunch! My message for  people with disabilities is to try new things. I wasn't sure if I should do volleyball and I'm so glad I did. Sometimes, it's easier for those of us with disabilities to not try new things or not get involved, but people are really nice most of the time and they are so happy to have me as a part of the team. This could be the same for anyone with a disability. Give people a chance to meet you and talk to you. You never know unless you try!

Sunday, January 31, 2016

Project Dance FIERCE

The club I'm in at school hosts this awesome event every year. It's called Project Dance. This year, we are calling it Project Dance FIERCE. We have a four hour dance party that is open to anyone who wants to come. A lot of people from our school and our community that have special needs come and we all dance and have a blast! Even more people come that don't have special needs and it is so cool. I love dancing and hanging out with my friends. Our goal is to provide a fun time for all different people, to raise awareness about disabilities and to raise money for local organizations that support people with special needs. Here is a link to our website if you want to check it out.

I want to tell you why I love Project Dance. Like I said, I love having a dance party with my friends. Also, I love to see so many different people having fun. It's also a great way to meet new people. There are a lot of people with special needs that don't get to go out and socialize very often. Sometimes the situations are hard for them and sometimes it's just too hard or they aren't feeling well or anything could keep them from going out. It's so cool to have a safe and fun environment to just be with other people. So, if you're from around this area, join us on February 27 at St. Charles North High School in St. Charles, Illinois. Oh yeah, this year Project Dance is on my birthday! How awesome is that?

Hope to see some of you there!

Wednesday, December 23, 2015

Happy Holidays

Happy Holidays everybody! The holidays always go by so fast! It's frustrating that we won't have a white Christmas, but at least it's not below zero! We are going to my aunt's and uncle's house on Christmas Eve. On Christmas Day, we will go to church and have dinner at our house with some of our family. Going to church is a really important part of celebrating Christmas for me and my family.  A couple days after Christmas we will go see our cousins and go see the new Star Wars movie! Christmas is my favorite day of the year because it reminds me of all of the things I am thankful for. I talk about being thankful a lot because it is so important.

I want to tell you about something great I was a part of. My school district hosts a Christmas party for kids with special needs and I got to be a volunteer for it this year. Me and my friends helped out with some games for the kids and I got to hand out prizes. It felt so good to help make the little kids happy. They all were having a great time.

My disability doesn't interfere with my holiday celebrations at all. I can eat all the great food, sing Christmas songs and open presents! I feel lucky that most places are wheelchair accessible. We have a portable ramp that we take with us so I can get into houses that aren't accessible. So I can go to anyone's house!

I bet you're wondering what I want for Christmas. I really want an iPhone 6S, another dog and I want a laptop. I really enjoy giving presents to people, too.

Here is our Christmas card:

I'll be back in the new year! Have a safe and blessed holiday!

Sunday, November 8, 2015

Holidays are coming up

It's that time of year again. The holiday season. My favorite time of year! A time for being grateful and giving. I love the holidays because there is so much joy. Sometimes it is tough for disabled people to be grateful. Here is a Ted Talk on how to be more grateful:

When you are more grateful, you are happier. I strive to be grateful everyday. Some days it is really hard. Here are some of the things I am grateful for: 
1. My family 
2. My friends 
3. My power chair
4. My school 
5. The community that I live in
6. My house 
7. My dog, Bailey

Gratefulness has a direct correlation with happiness. When you are feeling down, think of all of the things you're grateful for.  I guarantee, you will be happier!

Monday, September 7, 2015


Happy Labor Day everyone! My homecoming is coming up soon. One of my favorite times at school. It is so much fun!  I love homecoming because I can have a normal homecoming experience like the regular kids. Here's what I'm thinking: What should I wear? Going to the parade. Going to the football game. Going to the dance. Isn't that a normal homecoming experience? What I am trying to say is that disabled people can just have as much fun as regular people. Here are some pictures of previous homecomings:
Me and my sister, ready for the game!

Silly pose with friends before the dance

Taking a break from dancing
I love homecoming because my school has spirit week before homecoming and almost everyone gets into it. We have competitions between classes and volleyball and other games. We have a shorter school day on Friday so we can have a parade downtown. Then there's the football game where it's so loud in the student section that we can't even hear. And of course there's dinner with friends and the dance. I love the dance. Did you know that people in wheelchairs can dance? My arms will be flying around! I love being in high school!

Sunday, August 16, 2015

Back to school...

     I am really excited for my Junior year of high school to start. I'm not excited about homework, but seeing my friends more, football games, basketball and Homecoming make me happy. I'm also excited about Team Polaris (that's the awesome club that I'm in at school). We have so much fun in that club! My sister will be a Freshman at my school this year so it will be kind of nice to see her and her friends around. I'm also super pumped about Project Dance this year, it will be in February so more details later.

     This has been a great summer. I've done a lot of stuff with friends and family. We went to Iowa a couple times and Kansas to visit my cousins. I went to a couple of pool parties that were a blast. I had some friends over to the park by my house and we just hung out and had snacks. 

     Some things to remember as school starts...

  • Try to make new friends
  • Try something new, like joining a club
  • Try to get good grades
  • Get involved
  • Be nice to everyone and SMILE

      Summer isn't over yet...