Tomorrow we are going on a trip and I can't wait! We are going to visit some friends and some of my cousins will be there, too! It will be so fun because we get to eat out and stay at a hotel. We stay up really late and just hang out. They always act normal around me. Even though I'm disabled. It's important to me when people treat me like everybody else. I don't like it when people baby me at school or any where. My sister told this kid that just met me once "he's a regular kid like you, he just happens to be in a wheelchair". It was funny because she thought she scared him!
I heard a saying from Zach Anner who has CP (he is hilarious, look him up on You Tube). Zach said "when life gives you wheelchair, make lemonade!" Watching people like him helps me feel better because he is a lot like me and is having a happy life. He inspires me to try to be successful and I feel like my life will get better.
Hi, Jack! My name is Ellen and I have a son named Max, who is 9. He also has cerebral palsy. I sure hope he is as smart and cool as you are when he is 13. When you say that you want people to treat you like everyone else, I wish the same for Max.
ReplyDeleteI love Zach Anner, too! He is so funny. I hope you have a great trip tomorrow.
My mom says you have your own blog about your son. I think that's cool. Thank you for your comment.
DeleteHi, Jack! I'm really looking forward to being a 'regular' on your blog! I've got you tucked into my bookmarks way out in Canada :) Hope you have a great trip!
ReplyDeleteYou are right, having CP can be very hard because there can be so many different things to deal with. Just this week we found out that my son Tim may need heel cord surgery. He is very nervous and we hope that there is something else that they can do to help the tightness in his ankles.
ReplyDeleteHope you have a wonderful trip Jack! Have fun and be safe!
I wish that he gets better without surgery. I will pray for him!
DeleteHey dude, looking forward to seeing you tomorrow and don't forget, the number one key when your feeling down is prayer. God has more tips than anyone else I know :)
ReplyDeleteThanks for the advice cuz! You are right.
DeleteJack! I am so happy to have found your blog. My son is five, has CP and is in a wheelchair as well. I am going to show him your blog and read the entries to him because I know he will enjoy it. Thank you so much for sharing your experiences with all of us.
ReplyDeleteHi Jack,
ReplyDeleteNice to meet you, I have a beautiful 5 year old granddaughter named Hailey who also has C.P. and she is awesome too! Thank you for starting this blog, I look forward to following it and looking for your advice and insight about your everyday day life.(do you have a subscribe button so that your entries automatically make it into my email) Your ups and downs, good times and bad times, we all have them. I love your attitude and would love for you to be a guest blogger on our "Painting for Hailey blog?? Let me know if this is something you might consider. Looking forward to hearing from you. xoxo Grammy
Thanks. At the bottom it should say subscribe by email.
DeleteHi Jack. I'm glad to have met you. I have a seven year old son we adopted nine months ago from Ukraine. He has CP and isn't speaking much yet. I like reading what you write. It lets me know what he might be thinking. He is in a walker but uses a wheelchair sometimes too. Keep writing!
ReplyDeleteYou are pretty awesome! Good for you to write about how you feel and to share your experiences with others. Educate the world is what I say! I have twin seven year old daughters, Hailey and Olivia. Olivia has CP and Epilepsy. We have created a blog for her too. I really wish we knew what she is thinking as she does not speak. That eye gaze technology sounds amazing! Looking forward to reading your posts with my girls.
ReplyDeleteThanks for reading and following my blog. I'm sorry that your daughter doesn't speak. The eye gaze is super cool.
DeleteHi Jack,
ReplyDeleteMy husband Ron has CP and we are both thrilled by what you have to say. You are an impressive young man. I hope you have a fun trip and enjoy your visit with your cousins. I worked with a lady who had a machine that spoke for her (she pushed the buttons with a tool fastened to her head) but I think the eye reading technology you are talking about would have been much quicker and easier for her. I will contact her and let her know about it. Anyway, we will be following your blog! Thanks for helping to educate people.
Pam Allen
Thank you. Yes, the eye gaze is much easier. I used to have switches.
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