Saturday, July 21, 2012

My first post!

     Hello everybody! My name is Jack, I'm 13 years old and in a wheelchair. I have Cerebral Palsy and sometimes I really hate it! I want this blog to be a place where I can write down my thoughts or share a joke with all of you. I promise it will get more interesting!!!
     I have the coolest thing! It is called an Eco2 from PRC. It is a communication device and a computer and it uses eye gaze technology which means I can just look at letters or icons and it types for me! I can talk but I am sometimes hard to understand.
     For a while I've been thinking about how hard CP is. My parents have been always right there for me. One of the reasons my CP is hard is because I am not allowed to play on regular sports teams with my friends. So I help out with teams sometimes but it isn't the same. This year I played baseball on a challenger league team for kids with special needs. That was better than nothing but I would have rather been on a regular team with my friends. I want to find a basketball team. Maybe Derrick Rose could borrow my wheelchair while he recovers! I play sports with my friends sometimes but it's been a long time.
    So to sum up about me I am the biggest sports fan in the world (especially Chicago Bulls, Bears, Cubs, Blackhawks). Having CP is hard but I still have to live through it. Every week I will plan on posting something. I hope it will help people just like me with CP realize they're not alone!
Later,
Jack

32 comments:

  1. Hey Jack. I really like this website so far. First comment! :)

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  2. hey jack! my name is lexi and my grandma told me about u!! i guess we are 2nd or 3rd cousins!! its so neat to actually hear more about u on this website and hope that we can get to know each other more!! have a good week and i will talk to u soon!

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  3. Nicely done, Jack! Excited to read more in the future. Glad that you choose to be positive, in all circumstances.

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    1. Great job, Jack. You're a smart, funny guy with a lot to say and I'm looking forward to your next post. And yes, you are still awesome!

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  4. Jack - congratulations on your new blog! What a proud aunt I am. I already know that you are funny and extremely knowledgable about sports (although you should pick better teams). Now lot of people will know too. Looking forward to reading more.
    Love, Aunt Judy

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  5. Jack - Great start! Can't wait to read more. I had a thought since Ron Santo was inducted into the Hall of Fame today, can you make one of your future blogs about your opportunity to meet him?

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  6. Awsome blog Jack!! And I also agree that you are awesome!! I can't wait to see you next week!! Maybe you and the boys can do some sting pong:P

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  7. Great blog Jack! I'm excited to share your blog with other kids I meet with CP!

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    1. Thanks! I really want other people with CP to see it. I couldn't do it without my Eco!

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  8. Hey Jack! This is a great blog. I want to hear more about the Cubbies! Is it okay with you if I send this information to my cousins and friends? -- Sharon

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  9. Hi Jack, I think you are awesome, I have a 12 year old son named John who has cp too. He uses a dynavox to speak and is learning to use an eyegaze device like you. You should be very proud of yourself, it can be hard and tiring to use. Guess what, John loves sports, and all Chicago sports teams, plays baseball and especially loves the cubs. Isn't that funny?

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  10. Thank you for your comment. Yes it is funny, sounds like your son is a lot like me. Does your son have a wheelchair?

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  11. Jack..nice blog. I'm a big Bears fan (Cubs fan too, but I never find time to watch any games)and am really looking forward to this season with a hopefully improved offense. Any coach will tell you that the mental aspect of a sport is just about as important as the physical aspect...so you will be contributing more than you know to any team with which you are involved if you keep up your love for and knowledge of sports. Some day you will be a big shot analyst or statistician or consultant with a big league team and all your friends will be hitting you up for tickets! Looking forward to reading more on your blog.

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  12. Hi Jack,
    You have a wonderful attitude. I am glad you have this blog. I have a son who also has cp. He also has a wonderful attitude. Unfortunately he can not talk and we are working on communication. Hopefully some day he will be able to express himself like you.

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  13. Hi Jack! I'm really looking forward to reading more from you - you've got a great attitude! My daughter is 5 and she also has CP (and she'll be getting a device from PRC soon too - she has a LOT to say, she just has a hard time saying it, as I'm sure you understand!). I'm always looking for positive role models for her and I think I've found another one in you. :) Best wishes from Atlanta!

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  14. Hi Jack! this blog is great, I can't wait to read more and to get a glimpse of the world through your eyes :) I'm 26, and my husband has cp. He loves sports too...he can't ever find anyone to play basketball with! maybe someday you both can play! he is getting a new wheelchair tomorrow and is really excited, its going to have camo paint..he's going to be hard to find! haha. keep your amazing attitude...and always follow your dreams :)

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    1. Thank you for liking my attitude. I hope your husband likes his new chair.

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  15. Great post Jack! My son Tim is 13 too and he has CP too! He also uses a wheelchair and a communication device. We are sports fans too, but we live in St. Louis so you know what that makes us? Cardinals fans!! :) We still love your new blog and can not wait for your next post!

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    1. Thank you for your comment. I hope your son has a good attitude about having CP. It helps but it's hard. GO CUBS!

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  16. Hi Jack,
    I've written to you on your last post. I would love to do an on=line interview with you for my "Painting For Hailey" blog, I also write content for a couple of other online sites and maybe put our interview on them as well. Can you email me harrold.janet@gmail.com

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  17. Dear Jack,
    Great blog. My son is also 13. He started 8th grade TODAY!!! He is not happy to have to go back to school. What grade are you in? Do you like school?
    Jane

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    1. I start school next week. I'm gonna be in 8th grade, too. I am not happy too about school.

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  18. hi jack you are no difrent then anyone!!!!!!!!!!!!!!!!!!!!!!!!!

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  19. im a kid that lives in a town right next to you and i am just like you

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    1. Thank you! That means a lot to me.

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  20. Hi Jack,

    My name is Izabella and I am a conductor - working with children with Cerebral Palsy.
    I just came across your blog today and I am so impressed! You are amazing and brave to talk about yourself! I am absolutely sure you help others a lot!
    Keep up your awesome work!
    Best wishes!!

    Here is my blog: www.playingwithangels.wordpress.com

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